Hidradenitis life! Pus and pain 24/7.

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I suffer from Hidradenitis Suppurativa. I am trying to build a community with other HS sufferers to create awareness of how serious this disease is.

2 thoughts on “Hidradenitis life! Pus and pain 24/7.

  1. Hidradenitis Suppurativa (HS) Citizen Science Action Team-please take a look and decide if you want to be part of this.My daughter has HS and I’m desperate to help her.Thanks Carlo.

  2. Hello. My name is Chanice. I’m 18 years old and I’ve just been officially diagnosed with HS. My first flare was at 9 years old. And I had a baby about 3 months ago and now my flares are way worst. I just started watching your videos and liked your page on Facebook tonight. Thank you so much for putting yourself through the expense to help find a cure for others with HS. We greatly appreciate that. My biggest emotional problem is my depression and self confidence with this disease. As a female I am very self conscious about being intimate with men and wear clothes that show my flares such as bathing suits and no sleeved shirts. I find it hard to function throughout the day and I pray my little girl doesn’t grow to have HS. It’s so hard not having treatments or cures. I’m not sure what else to say because I feel like I’m ranting too much but again I say Thank You.

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