Unfortunately HS is not the only disease suffer from. I also suffer from Pars Planitis.
Pars Planitis is swelling and irritation of the uvea, the middle layer of the eye. The uvea provides most of the blood supply to the retina.
What is Pars Planitis?
Pars Planitis is often referred to as Intermediate Uveitis. Patients with Pars Planitis have inflammation in the intermediate part of their eye immediately behind their natural lens in the front part of the vitreous cavity.
Is Pars Planitis dangerous?
Yes, patients with chronic recurrent inflammation are at risk to develop retinal scarring, cataracts, peripheral retinal detachments and glaucoma. In order to prevent these vision blinding complications patients need alternative therapies.
Unfortunately I now suffer from Glaucoma. I have a very serious case of Glaucoma that requires me to take 4 eyes drops twice a day and to see my eye doctor every 90 days max. My eye pressure is very high and I am losing side vision. I am only 39 as mentioned and the out look is not very good.
MY DEALINGS with Pars causes massive pain t my eyes. it is a form of arthritis so a few times a week my eyes swell and feel like they are going to burst out of my head. Again more advil. My vision is very poor. I have inflammation in my eyes that causes vision loss. My eyes are like looking through a dirty window. All of the time.
Wait that’s not it.
I also have cataracts. The medicine from the pars caused me to get cataracts in my 30’s. I have had surgery in both eyes and had them replaced. both surgeries had complications of course. The first was done, but after it left a Posterior Capsule Opacity. Posterior capsule opacification occurs because lenscells remaining after cataract surgery have grown on the capsule. In some cases, if the condition progresses significantly, your vision may be worse than it was before cataract surgery. Nice yeah I know. i had to have that removed as well.
The second surgery. The next day I had to go in for a follow up. eyes pressure should be about 12 to 15. My eyes pressure was 65. My doctor told me if I was older i would be blind. So what he had to do was cut my eye with a knife and drain the fluids. Man it was gross, then he had to stitch my eye ball. man that was a great feeling. So now my eyes are pretty much in pain daily to go aloing with everything else. And one of the worst parts is the treatment required me to get shots in my eye balls, yes that’s right shot in my eye balls.
So the bottom line is I suffer from Pars and Glaucoma which results in very painful bad vision. I can not even drive at night or even in the day very good.
Of course there is more. I was also diagnosed with Inflammatory Bowel Disease.
The term inflammatory bowel disease (IBD) describes a group of disorders in which the intestines become inflamed. What causes them to become red and swollen is not known. The most likely cause is an immune reaction the body has against its own intestinal tissue.
Two major types of IBD are ulcerative colitis and Crohn’s disease. Ulcerative colitis is limited to the colon or large intestine. Crohn’s disease, on the other hand, can involve any part of the gastrointestinal tract from the mouth to the anus. Most commonly, though, it affects the small intestine or the colon or both.
If you have an IBD, you know it usually runs a waxing and waning course. When there is severe inflammation, the disease is considered active and the person experiences a flare-up of symptoms. When there is less or no inflammation, the person usually is without symptoms and the disease is said to be in remission.
Basically in my case what i have is spasms in my intestines constantly that leave me with diarrhea 24/7. Every morning it takes me a minimum of 1 hour or more to go to the washroom before i can shower and dress.
DIABETES: Yes you guessed it I am diabetic as well. I am taking to medications to help keep this under control. My blood sugar level is always very high.
So needless to say I never really ever feel good. I am always in pain like massive pain and by the age of 40 I am wondering if I will be able to function at all.