Humira and Hidradenitis. I have been on Humira about 3 months now. No changes yet with the HS. But it may take up to 6 months to see any change at all. Please stay tuned. I do post weekly videos on youtube to follow the humira progress as well. Thank you guys so much. Also please check out my facebook hs page. A nice group with HS sufferers from around the world.
Ahh man as you know this sucks. But I added another video. All of you with HS know how much this hurts. I am just trying to create some awareness to stop this disease!
Hello everyone. As you know scams against people with HS do not make me very happy. I have found and named quite a few of them. I have recently been in contact with the author of one of them. We have had a few email chats and I was not very nice because my beliefs are very strong on this subject. To make a long story short I am going to read the book and follow it to the T. This process will take some time of course. If I see any remission in my HS I will become this books number one supporter. Of course I am still skeptical very skeptical. But after talking to the author I truly believe she is a genuine caring person.
At first I thought she may have been into this for the money. I also believed she did not have HS. But I was proven wrong. So I am willing to give the book a chance to see what happens.
As you know I just got out of the hospital and i’ve only been out a week and all of my flares are back. So I am willing to give it a try. My last hospital visit was for about 5 days and was the worst pain of my life. So I am looking for anyway to never feel that again.
And again there is NO CURE for HS. Maybe remission hopefully. But it will never go away for good. But as all of us with HS know any day without pain is a good day!
Last Saturday My Hidradenitis suppurativa was out of control. It gave me a fever of 104 degrees. That was the highest I have ever had. I just got out of the hospital after a five day stay. I was pumped antibiotics through ivs. Now things are calm and I am home, but I have to say this is getting very hard to handle. The older I get the worse this is getting. I met with 3 doctors and a surgeon. Nothing they can do. My HS is so bad it is literally making me bed ridden. I will not give up!!!!!