Hidradenitis Suppurativa pus and blood.
May 3rd, 2016 at 11:59
Hey carlo sorry humira is not working for you and that your dr.is leaving and the other ones won’t give you something for the pain. You may have another option for your pain. I see a pain management Dr for mine because most Drs don’t like to prescribe pain meds so maybe seperate the issues will work for you but don’t wait until your out of meds do something about it now show a pain Dr your wound and explain the situation and you should be good. Its what I do for my pain because dermatologists don’t generally give pain meds long term.good luck
May 3rd, 2016 at 15:09
Hello I can’t see a pain specialist I have medical marijuana in my system. Recommended to me by a Dr.
May 5th, 2016 at 17:04
Thank you for sharing your world. I had no idea of this condition until I ran across it on YouTube.
I love to watch pimple, cyst, etc popping but this bothers me because it is an everyday constant event for you.
I pray that some kind of miracle happens for you in your lifetime.
God Bless and thanks for sharing.
May 5th, 2016 at 19:58
I too suffer from this , and I feel your pain. I feel I almost always have a boil that drains , my stomach , arm pits , and under my breast seem to be my “hot spots” but of course as you know it can flare up anywhere at anytime . I am happy I found you on the internet because I would like to follow your story and see if you find anything that will help you . I understand what you go through and I hope you find something that will work for you , and maybe I can find something that works for me . Please keep us updated, and remember you always have support in other HS sufferers .
May 5th, 2016 at 20:09
Thank you so much. If you ever need to talk please contact me here. I’m always available for support or advice. https://www.facebook.com/hshelpnow/
May 20th, 2016 at 15:34
Hello, I suffer for HS too. Like you mentioned before, I also got mine as a teen (around puberty) and have been suffering since. Granted, I’m in my mid twenties but I am deathly afraid of it getting progressively worse. Mine situate mostly in my arm pits and I have tunneling, discoloration, and scarring there. The last major flareup had me bedridden for a week with a golf ball sized pus pocket that refused to break the surface. I couldn’t even put my arm down due to the shooting pain. I ended up getting that one lanced and have been prescribed higher doses of pain meds to deal with bad flare ups. I am scared of drug addiction or being immune to a dosage prescribed later in life due to some other ailment and suffering then.
I’m glad I ran into you. I’ve never met anyone who understands what I go through during bad flareups. I will continue to follow your blog for support + updates.
Have you ever tried an auto-immune diet plan? I hear it may help the number of flare-ups at a given time. I am willing to try anything so I’ve been looking into that as well. Also how quickly did yours progress to its current stage?
May 24th, 2016 at 15:23
How come my comments don’t show up?
May 24th, 2016 at 15:24
They’re all there I just looked. Thanks.
May 27th, 2016 at 09:52
P.S, Spiritual healing doesn’t require you to give up any other forms of therapy. I feel it just centers and guides you to the right path. Perhaps it speeds up the healing process and in places where no other options are available, I feel there is nothing left to lose. I am not promoting it for any reason other than feeling it may benefit you too. I do hope the humira treatments have made more of a difference to you now. Stay strong and positive as always. And thanks for being so brave and willing to share. (Took me a long time to even talk about it with my family). I truly admire your willingness to help and inform others as to what it really is like for all of us.
June 22nd, 2016 at 16:19
Would something like a breast pump or other suction device to help with the drainage? I don’t see why the doctors wouldn’t put in a grenade to help with the daily drainage, at least in specific locations… so why not use a suction device to help with the drainage?
July 3rd, 2016 at 16:54
Hello thank you. Unfortunately It doesn’t work very well with hs.
July 8th, 2016 at 16:48
I feel your pain. I have it to grom my 16. Age
I had over 30th srgery. The only thing that helps me is oaks bath and in the summer when I go to Adriatic cost and sein in the water as much as posible
My skin is better then . And a week of no pain is a blessing.
July 13th, 2016 at 14:58
I found your tube post and I just cried! I know the pain I have it under both arms, groin, behide both legs, and my chest. There are times I just want to give up! It was just so relieving I guess is the word to use to hear you and to find someone that understands!! I had to use my daughter in laws car i was so worried I would leak on her seat I used a towel everytime I would have to go out. My husband and I will go to the store and I will stay in the car because of the smell! My mother in law and husband say take more showers, they don’t understand I can take one and a few mins later the smell is back! Thank you for this site and the tube posts. God bless!!!!
August 6th, 2016 at 02:44
OMG! I feel so bad for you – I understand your pain thanks for sharing with us all
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