Hidradenitis Suppurativa pus and blood.
A day in my life with HS. Warning this is GROSS!
January 10th, 2014 at 16:52
Hi Carlo, I read some of your posts and your “about me” section. I too have HS, though not as badly as you. I still have the popping boils, the scars, the pain, but just not as big as yours. Or at least mine hasn’t progressed this badly yet…
I read that you tried changing your diet and stopped smoking. I too have tried those as well, nothing seems to make it go away, but there are some things that have helped and I wanted to share them with you, though I know you probably know some of them already or do these things already. But in case you don’t here they are. I find drinking lots of water helps, it helps my skin stay hydrated and helps my body overall. I also started taking Zinc and tumeric supplements. They are for my immune system. I have very bad allergies, a hyperactive immune system. There are new theories about HS that it is an auto-immune disorder, not a skin disorder. My theory is that my body starts attacking my pores thinking my skin or my sweat is a threat and therefore over responds, which produces the pus and the boil. It’s a very simplistic observation, but anyway, I find that if I help my immune system with these good immune supplements, my system gets more normal and less hypersensitive, thus less outbreaks.
Along those lines, I have read that many people have been prescribed Remicade, Enbrel or Humira for their HS. These drugs are FDA approved for the treatment of arthritis and psoriasis in the U.S. Both of those conditions are also auto-immune disorders and unsurprisingly some HS suffers have these as well. These drugs can be prescribed by dermatologists (for psoriasis) or arthritis/immunology specialists. They require a lot of blood tests to begin, and are expensive, but maybe just maybe they will work for you. I know personally that auto-immune diseases run in my family (coincidentally enough, rheumatoid arthritis, lupus, AND psoriasis!) . And so does HS, despite gender or weight. So in my circumstance, I believe this is 100% genetic and auto-immune related. Are there any people in your family with HS or related auto-immune disorders?
I do not have other auto-immune diseases yet and I’m 30, and my HS isn’t so bad that I can’t lead a normal life, so I don’t believe I’m a good candidate or would be able to get a doctor to okay them for me. But someone like you, with this severity absolutely would. I know you already see a dermatologist, perhaps you could suggest it to them. HS is an orphan disease and so many your derm isn’t aware of this new discovery. I know every person’s symptoms and triggers are a little different, but I hope I have given you some new or helpful information to unlock the solution to your HS.
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