Archive for December, 2013

Hidradenitis Suppurativa and smoking. Happy New Year.

I am living proof smoking does not affect HS. I quit smoking in July and this December is the worst flare ups I have had since December 2011 when I was hospitalized for a week. I have not had a smoke for 5 1/2 months and not one thing with my hs has changed if anything it is worse. Right now I am leaking dark purple stuff. This is the stuff that stinks bad. I can shower and change all bandages and I smell within 3 minutes. This December has been the worst smell of all time. I have had people comment like wtf is that smell. It sucks. I had an eye Dr. appointment a few weeks ago and they put me in a small room OMG the room smelled so bad I was ashamed and embarrassed big time. After 25 years of this I am still embarrassed and ashamed. 

People think I may be lazy or what ever but it is hard to be around people or do anything. When I go to the store to get groceries or whatever I shower and go as fast as I can before the smell kicks in. This December I went through 12 rolls of 3 inch tape and 800 4×4 gauze pads that how bad this friggin leakage is. 

Two other things I wanted to mention. Over November and December I have used two different soaps. No difference with either.

1. African black soap was great for my skin but does nothing fo HS.

2. Dial antioxidant soap, same nothing. But was nice on the skin.

I will be trying more this year and I will let you all know what happens. Again than you so much for reading and Happy New Year!

 

 

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Medical supplies.

Just got a shipment in today of bandages and tape for my hs. This is about a weeks worth supplies during the bad times. This stuff can get very expensive. On another note I am feeling pretty good this week.

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Hidradenitis Suppurativa the pain.

Hello everyone. Not to sound like I am saying the same thing over and over, but today the pain is some of the worst I have ever had. 2 vicadins at a time do not even start to mask the pain. The area on my right butt cheek is gigantic. It is seriously the size of a baseball and it is getting unbearable. I went to the Dr. today and was also told my diabetes is out of control and believe it or not I do watch what I eat. But now I may have to start insulin. I will find out Tuesday what he wants me to do. Also he said my potassium is to high so now I have to avoid all foods with potassium. I can not wait for this huge flair to break I will not be able to sleep or do anything until then. oh by the way HS sucks!

2 years ago.

two years ago this week is when I had the biggest flair up of my life and ended up in the hospital for a week. It was where my left leg connects to my body into my groin man it sucked bad. Now this week I have the same exact thing on the other side. I am praying this thing does not get so big. Right now it is about the size of a golf ball. I am going to double up on my meds and hope it does not go into the groin. It is very close. I do not want to spend Christmas in the hospital. And again thank you so much for checking out my blog it means the world to me.

Hidradenitis suppurativa Update!

Hello everyone just a quick update. It seems this week everything is flaring with a terrible smell. I do notice all the leakage is more of a darker color then usual. No changes at all except I did quit smoking in July and nothing has improved with the HS. Next year I am going to try an experiment with different soaps and cleansers weekly and see if there is any difference. Any ideas would be great appreciated.