Archive for October, 2011

A new HS growth on my neck!

Today I located a new Cyst on the back of my neck. This literally same out of no where. Right now it is about the size of a dime and solid as a rock. This is not good most of my problems are hidden. I will put a picture in the picture section once my camera battery charges. Man I am hoping this does not get much bigger and with my history I am sure it will.

Went to see a psychologist today for my problems with Hidradenitis Suppurativa

Wow, I must say this was not what I expected. What I am trying to accomplish is to manage the mental side of my HS. But I felt like I was seeing a Dr. not a psychologist. Of course everyone not familiar with HS thinks they know the cure. All he basically talked about was natural cures and how I need to diet and cleanse my system. Trust me it has been 23 years and I have tried everything. next week i am going to explain to him how I need to manage the mental aspect of my problem. He was a nice guy and smart, but I have been to 50 doctors plus the mayo clinic so the physical part is not taken care of obviously but it is under Dr. Watch. Also today’s pain is pretty severe time to to take more advil!

Hidradenitis Suppurativa is a pain in the!!!

Today woke up feeling pretty good. About noon I started to feel a flair up. It is crazy out of nowhere things are flared big time. No changes in meds, food or anything. Again I have had this 25 years and I never get used to it. The pain is extreme and now i am taking 4 advil every 4 to 5 hours. Hopefully i can sleep usually during these flair up’s I have a very hard time sleeping.

I hate the SMELL of Hidradenitis Suppurativa.

Today was a pretty good day pain wise. But this smell is driving me nuts. I went out to eat with a group of 3 friends for lunch and I had to leave because the smell was getting bad. They did not notice but I did and I had to get out of there. and do not get me wrong I bandage everything very good before I ever go anywhere but sometimes the smell just creeps out and it stinks man I hate it. It is so embarrassing. And everyone wonders why I am becoming a hermit. A lot of  my friends do not know the severity of this. Like I said it is rather embarrassing. It is just impossible to explain. Everyone that does not have it thinks that it can go away, just try this med or this cream and i tell them nothing works trust me I have had this for 25 years and I have tried everything possible from meds to herbs to every magic potion available. But some still think they know everything. Trust me if I could get rid of it I would.

A new chapter in life today.

Today I am going to see a psychologist for the first time. I want to see if they can help with the mental side of things. As you know most people go up and down with HS, but I have noticed lately I have been down more than ever. 20 plus years with the disease will wear on you big time. So maybe they can bring me some new in sites. Thanks again for reading and I will post an update after my appointment.

Follow up. Well that was a waste of time so far lol. I went for the appointment and they looked at me like I was nuts. The people who booked it made a mistake and Iwas not on the books. Not a very good start. I will try again Thursday. This does not give me a good impression of this office.

 

Ahh finally my HS calm’s down for a day!

Today was pretty good. On a scale from one to ten the pain is only a 5 1/2. This is great maybe I will finally get a good nights rest without 4 advil.